This has been a roller coaster season of not understanding much of anything that is going on.
Both of my boys are sleeping and there is worship music playing in our hotel room. I was able to get a few hours sleep once we got home from Cade's pre-op appointment.
Cade has been coughing off and on for the past few weeks. His nose has been a bit runny and he just hasn't been at 100%. I have done literally EVERYTHING I know to do in order to get him better. His surgeon put him on an antibiotic that he reacted to so we had to take him off. He has been sleeping with a eucalyptus filled humidifier, rubbed down with an all natural version of vapor rub, eaten only organic foods and so much more. On top of all this we have been covering him in prayer and worship music. Well... surgery is a no go.
The Nurse Practitioner came in and checked his lungs and told us she would have to clear him with the Anesthesiologist. While she was gone the child life specialist came in to walk us through what the process would be. She came back in the room and said they couldn't risk the increased chance of him getting pneumonia. It felt like we were kicked in the gut.
I went through this ridiculous overflow of emotions from angry to confused to hugely disappointed. The most difficult part by far was the fact that Bob and I had emotionally prepared our hearts for what was happening. We both called our moms and said, "It's canceled and we don't want to talk about it right now... we will call you later." Looking back, that wasn't quite the most sensitive thing we could have done in that moment. So, after some tears flowing from a weary heart and a good nap, we have come to terms with it.
After much begging from my mom and dad :-) we have made the decision to stay in Oakland through the weekend and make it a really joyous and fun time with just the three of us... something we haven't done too much since Cade was born. (The just 3 of us time, not the fun part - lol).
We are walking distance from several fun shops and restaurants. Our cabinets are stocked with groceries and our hearts need peace and rest.
As of now, the surgery is rescheduled for the first week in March (yuck) but there are 2 dates between now and then that we could get into if other people cancel for whatever reason.
Above all else, we know (even if we forgot it a few hours ago) that God's faithfulness, grace and mercy are overflowing and we can tap into them at any point in time. We also know that his timing is perfect and like my sweet friend Inga said, maybe God will have a surgery day of his own with Cade tomorrow!!
Choosing to walk around rocks of offense we don't understand and focus on The Name Above All Names!!
We love yall,
Bob and Kimberly
1.28.2010
Oakland Extended Stay!
We are here! No turning back now!! :-) My amazing parents blessed us with 4 nights in a hotel close (2.33 miles to be exact) to the hospital. On top of that my amazing Aunt Kay gave us an abundance of grocery money! So, we packed up, went to whole foods and here we are!
The room is quiet and peaceful and we are so thankful to not have to make the hour, plus, drive over and over again. It is almost 1 am and I so should be sleeping! I'm not sure if it was the cat-nap I took a few hours ago or my brain is just spinning, but I can't seem to sleep. Uffda! Luckily Bob is snorin' away next to me (hehe - I love that man!).
Cade is amazingly unfazed by the craziness and is happy as always. He is sleeping sound with a eucalyptus humidifier next to him! Chest congestion GO!!
At this point, Bob and I are doing well. Bob still thinks it feels somewhat surreal. I agree, it does. I am just ready for it to be over and to be getting out of the hospital. The surgeon made my heart feel good when he said he was a nervous wreck when his son got tubes in his ears! There is something about the word 'surgery' and your child in the same sentence that is difficult to swallow. It's as if you have complete tunnel vision and can only focus on that one thing until it is done. (I was a mess trying to do laundry this week!)
I also think about all of those parents out there who have babies going into surgery with little hope of survival, much less a great outcome. It quickly puts our life into perspective and I realize how truly blessed we are.
Going into it I have no paradigm for how I am going to feel when I have to hand him to that nurse. I assume I will tear up a bit, put my worship music in my ears and worship in the waiting room. If there is one thing I know for sure it is that the Holy Spirit shows up every time we worship and honor him... Therefore, I plan on doing just that! :-)
Thanks for the prayers!
The room is quiet and peaceful and we are so thankful to not have to make the hour, plus, drive over and over again. It is almost 1 am and I so should be sleeping! I'm not sure if it was the cat-nap I took a few hours ago or my brain is just spinning, but I can't seem to sleep. Uffda! Luckily Bob is snorin' away next to me (hehe - I love that man!).
Cade is amazingly unfazed by the craziness and is happy as always. He is sleeping sound with a eucalyptus humidifier next to him! Chest congestion GO!!
At this point, Bob and I are doing well. Bob still thinks it feels somewhat surreal. I agree, it does. I am just ready for it to be over and to be getting out of the hospital. The surgeon made my heart feel good when he said he was a nervous wreck when his son got tubes in his ears! There is something about the word 'surgery' and your child in the same sentence that is difficult to swallow. It's as if you have complete tunnel vision and can only focus on that one thing until it is done. (I was a mess trying to do laundry this week!)
I also think about all of those parents out there who have babies going into surgery with little hope of survival, much less a great outcome. It quickly puts our life into perspective and I realize how truly blessed we are.
Going into it I have no paradigm for how I am going to feel when I have to hand him to that nurse. I assume I will tear up a bit, put my worship music in my ears and worship in the waiting room. If there is one thing I know for sure it is that the Holy Spirit shows up every time we worship and honor him... Therefore, I plan on doing just that! :-)
Thanks for the prayers!
1.25.2010
"It's Genetic"
Well, we went in for our pre-op appointment for Cade's surgery! We were super blessed to be able to have insurance approve him at such an early stage! January 29th at 8:30 Cade will be getting is implant in his right ear!! We made the decision to go with the Nucleus 5. This device is 1/2 the size of all the other devices on the market right now, and since Cade is still so little (8 1/2 months) we decided the smaller device would be a better option.
At our pre-op appointment with Cade's surgeon, Dr. Murray, told us that Cade's hearing loss is a result of a gene called Connexin 26. Basically what this means is our future children will have a 1 in 4 chance of having a hearing loss. While that was difficult news to swallow, the part that was even harder was the doctor saying Cade has a 90% chance of losing the hearing he has in his left ear and will need a cochlear implant on that side as well. Well, we serve the God of the 10% and we do not accept that report. We continue to believe for complete healing in his body in Jesus name!
The silver lining on his loss being Connexin 26 is that it rules out all other ailments that come alongside of a hearing loss. The kids with this gene also seem to thrive the most with a CI. The doctor said he felt it was good news, despite seeming to be devastating.
Cade is currently within-normal speech range for his age... which is AMAZING! He is saying, "dada, mama, baba, mmmmm" and blowing bubbles all the time!! He is so much fun and one of the best babies ever! We are honored to be his parents.
Going into his surgery, I am a bit apprehensive, which is to be expected. I think Dad is more nervous than I am, at least at this point. We are both excited, but very ready for the actual surgery to be over with!!
GOD IS FAITHFUL!!!!
At our pre-op appointment with Cade's surgeon, Dr. Murray, told us that Cade's hearing loss is a result of a gene called Connexin 26. Basically what this means is our future children will have a 1 in 4 chance of having a hearing loss. While that was difficult news to swallow, the part that was even harder was the doctor saying Cade has a 90% chance of losing the hearing he has in his left ear and will need a cochlear implant on that side as well. Well, we serve the God of the 10% and we do not accept that report. We continue to believe for complete healing in his body in Jesus name!
The silver lining on his loss being Connexin 26 is that it rules out all other ailments that come alongside of a hearing loss. The kids with this gene also seem to thrive the most with a CI. The doctor said he felt it was good news, despite seeming to be devastating.
Cade is currently within-normal speech range for his age... which is AMAZING! He is saying, "dada, mama, baba, mmmmm" and blowing bubbles all the time!! He is so much fun and one of the best babies ever! We are honored to be his parents.
Going into his surgery, I am a bit apprehensive, which is to be expected. I think Dad is more nervous than I am, at least at this point. We are both excited, but very ready for the actual surgery to be over with!!
GOD IS FAITHFUL!!!!
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